I, along with family and friends, started Hunter’s Fight for a Cure Foundation of Alberta, inspired by my son, Hunter. Hunter was born with a rare blood disorder called Diamond Blackfan Anemia. Diamond Blackfan Anemia (DBA) is a failure in bone marrow production where red blood cells are not produced. Hunter requires packed red cell blood transfusions every three weeks. He also has nightly chelation to breakdown the extra iron stored up in his body as a result from all of his transfusions. Too much iron would become toxic and affect his heart, liver and other organs. To date, Hunter has received over 180 blood transfusions.
After realizing that rare disorders do not get a lot of attention or funds for research, we decided to do our part and bring awareness to our cause. Hunter’s Fight for a Cure Foundation of Alberta was incorporated in July of 2007 and became a registered charity in May of 2008. Our mission is to help find a cure or better treatment options for DBA. We raise funds for the Hematology Program and Child Life Program at the Stollery Children’s Hospital, DBA Canada, and help spread awareness for the importance of blood donations.
We would not know what Diamond Blackfan Anemia was if it wasn’t for Hunter and he has motivated us to help find a cure for him but we also fight for all the other children who suffer from DBA. All of these kids deserve a better way of life and we need your help to find it.
Thank you for taking an interest in Hunter and our cause.